Tuesday and now officially summer here. Monsoonal rains continue to pour each day with last night being the worse yet. July 17 is Bladder Cancer Awareness Day. I signed up for a picnic. Again, a club I never ever considered being part of and here I am. Yesterday Van and I were the only ones for most of our time in the infusion center. Due to my lack of white blood cells I was unable to have chemo. OK by me, not sure it is working anyway at this point. I am still very tired most of the time, and can only attribute that to the last medication I am still taking. Gabapentine lists that first on side effects. Hopefully I can end the dosage now that chemo is coming to an end.
Friday and Van took off at noon for her annual sorority bash in Michigan City. They are holding it at the casino hotel there, trendy. Although she always assures me she will call when she arrives, now at this hour she has surely been there a while and no call. Certainly another indication of a return to normalcy I think.
Another neighbor dropped in to talk with me and assure me that I was on their regular prayer list and that made a difference. What a neighborhood I live in. Dale M again mowed the yard today.
I find I can motor around better as the days go by, but the left leg is weak and aches constantly with or without the stocking on. A constant reminder of the cancer within carried with me. How nice.
Twice this week my normal every two hour urine extravaganza has included discharging flakes of dried blood I think, although I can only say from the sensation they are solid and have not fished one out for analysis. Makes me wary of the entire process frankly but there is no holding back.
Work is also returning to normal. I can still overdo it, and try to measure myself. The stockings are severe in case I did not mention it. Now I guess is my second week, although it is easy for me to loose track. I know Van is laundering them in a rotation and has a place set up to store them. I stowed the wrapping materials in the closet as the stockings seem to be doing the trick along with Inger’s daily work over. She also is gone this week end so I will be self massaging. I know that doesn’t sound right, but it is part of the disorder, MLD, manual lymph drainage, or to put it another way, go play with yourself. Nothing about bladder cancer is socially acceptable, even the unintended consequences like lymphedema it seems.
Jennifer is heading this way for the weekend, and Jocelyn is coming in tomorrow. Vanessa said I did not need any quiet reflection time while she was gone and they all made these arrangements to assure I would not. For me, what fun, as always I will go with the flow.
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