Showing posts with label health care. Show all posts
Showing posts with label health care. Show all posts

5.11.10

Standard Of Care Defined

Wireless and Ready

‘Can I tape this conversation?’ I asked.  Dr K was in at 8 am sharp.  He smiled and replied ‘what do you want me to say?’  ‘Well, it’s ok to say what you have to say, it’s just my Wife will kill me and this way she can be part of the meeting as well.’
So I hit the red button on the little recorder.  Our previous experience with my hospital stays included difficulty getting Vanessa in on the conversations with the key players.  It’s Monday morning at 6AM and I am digging the recorder out of my man bag (it’s not a purse) and making it accessible.  The nurse just came in and told me the urologists were running behind because they were entering their own medical orders.  I doubted that Dr. K or his resident would keep me in waiting until some late morning visit.  I just knew they would be in before Van.  Kudo’s to me on packing for this stay. 
‘Want to go home?’ Dr. K asked.  ‘I’m ready’ I replied.  After he left I hit the stop button and set it on the tray, grinning with the self satisfaction that can only come after decades of marriage that I did something really right for Vanessa.  In the quiet I hit the button and started to doze, only to wild click.  ‘This is Bea, may I help you?’  The question came in stereo from both sides of the bed and the hand held device that I could not find but obviously once again butt calling the nurse.  ‘Sorry Bea, wild click'  ‘OK’ she said cheerily. I must have wild clicked ten times a day.  Every time a patient and understanding reply.  I thought about my last few days, which in spite of my difficulty moving went by pretty fast.  Vanessa ever at my side and Jocelyn each day boosting our spirits and providing her Mother the kind of support only a loving Daughter can deliver.  My Surgeon or his Resident or both every morning, a check in from the chief nurse in charge on nursing care, housekeeping twice a day, ten to twenty IV alarms a day and visiting with my Nurse or her helper (PCA which I believe is Patient Care Assistant) plus the wonder of student nurses and frequent walks around the halls a veritable hiccup engine.  I shall always remember walking with Vanessa and the beautiful and graceful K (who was a masseuse and is now only a couple of semesters from becoming a great nurse according to another nurse that always volunteers more information than I really need.  Must be my inviting face is the only thing I can figure).  Students working very hard, strict protocols, nurse assistants and students walking 7 or 8 miles each shift, Nurses often called upon to change beds with workstations all about are hovered over their monitors if not their patients.   
Through it all an epidural in place and a happy button made it easy for me to greet every visitor with a smile and thank every visitor when they left.  Patient responsibilities begin with thankfulness and civility, period. 
I might be sick and helpless, but I have a responsibility to those who are caring for me to make their job as easy as possible.  The standard of care given me throughout my association with IU and Clarian has been nothing less than excellent.  My stay this time was marked by delays as new software was implemented.  No more post it notes or notes buried in charts.  Request for treatment and order for same will be digital.  Like any thing computer, the best way to learn it is to do it, which is like stepping of a cliff for a lot of people. 
With the hiccups throughout my stay except for sleep and brief periods during the day and of course the pain management I got to laugh a lot, they did not hurt but certainly made conversations challenging, and I am a talker.  When they started Dr. K dryly advised that the gas had to come out the other end before I would eat and I just laughed.  Wrong end, but it was a start.  I learned a lot about those who cared for me, their families, our shared interests, their work and life.  I shared freely with them as well.  We were all a smoothly operating team aimed at me firing out the door never to be seen again if the goal is met.  Smiling is an infectious thing and is easier than a frown, I checked it on snopes after Vanessa and I disagreed on the topic, she of course was right, so I tried to start it from wake up to the end of the day, another reason to just say yes to the epidural.  In the beginning Dr. E smiled and said it is part of the process as he explained the steps and order in which they will be taken.  He scrawled it out on a piece of scrap paper and gave it to me with a caring and sad look in his eyes.  The outcome is what it is and so we go on to the next step.  In spite of the long odds I got the chance to try for the cure and my caregivers put concern for me and my quality of life first every step of the way.  And that was how it was on this step in the process.

26.10.10

Prep And Prayer


Morning of the 26th and remarkably I am not hungry.  Contrary to my hopes and dreams, the laxative worked all night, hour by hour, oh what a joy.  No wonder I have no appetite.
At 8 am I am downing my second dose, one more today and I am done the intake phase.  Laxative for breakfast, a entirely new way to go at weight loss but frankly I would rather be fat.  Made it up to see the Boy’s today one last time.  Joe was in rare humor, Gerald presented the team with a sewer problem and Dan looked a lot like a Marine DI and was also in fine humor.  Much laughter by all and a boost to my spirits last minute.  So I rest in preparation as the night lingers.  No last minute stuff to clutter my head, what good would it do.  Hearing from loved ones wishing me well is good as well.  The double dose of nuclear option continues to effectively kill my appetite.  At midnight all intake ends.  I find I have weathered this well and it has not been as difficult as I anticipated.  Just another step in the process. 
Pre OP at 10AM.  I have been called for pre registration, to check to see if I have behaved correctly and done as instructed and reminded I have surgery tomorrow.  I am going into a teaching hospital and my surgeon is the department head, it don’t get much better than that for bladder cancer victims. 
My Niece inspired me to lyric with my Surgeons Prayer;
Surgeon and Nurse do take care,
That’s a Dad, Husband, Uncle, Cousin, Brother laying there.
A friend, a foe, the latter sad to say so,
with so much to do and such a long way to go.
So hold this life dear Nurse and MD,
As you do your miraculous ectomy.
I will fight to make a victory for you,
One you can talk of in future reviews,
For such a victory to be sure,
Means we were successful and finally cured.

3.9.10

Every Disease Is A Profit Center

One of the marvelous lessons I have learned is the breadth and depth of the health care industry. Just my little tiny speck of involvement reveals much more than hospitals, clinics, nurses and doctors. In my case there are those that make special lights, chairs, infusion devices, bags, pumps, hose, compression devices, electrical devices, the list goes on. All of this employment, research and resource aimed at bladder cancer and lymphedema. Each an industry in and of itself. And so it goes with every other body part and the body as a whole. This does nothing for energy independence, defense, or to cloth, shelter or feed us. It is an industry built around the old and feeble among us.
It is still happy face time. Things are going pretty good today as August fades. It’s early on Saturday as I catch up on this among other things. The air is cool, 50’s and dry. Sunrise appears to be a spectacular one in the making. The next few weeks will go quickly with anticipation of the next scan. I will continue to assign little importance to this event, considering it just another step in the process that is so well practiced and delivered by the cancer center.